(post by Tammy)
There is truly no place like home. We've been home for only one day and I feel more normal already. l love being able to cook something in my kitchen instead of eating sad looking hospital food or restaurant take out. This morning, I made omelettes for breakfast and realized that it's been so long since I've cooked anything. Sean must miss cooking too because he begged me to make cookies with him. We decided on something less ambitious and ended up making cereal treat bars at Natalie's request. Natalie and I made jello tonight. It was wonderful. I love sleeping in my warm bed instead of an uncomfortable convertible vinyl chair. I love uninterruped time with my family, without nurses, doctors, teachers, volunteers, social workers, nutritionists, the custodian, the linen guy, and cafeteria workers barging into our room every minute. Yes, there is no privacy at the hospital. People come in all day long. Some knock and some don't. Most of all, I love having both kids jump into our bed in the mornings.
We've become a hospital family. On the weekdays, Grant comes from work with briefcase in hand and announces, "I'm home!". We normally eat dinner with Natalie at the hospital together (really not, because Sean isn't there) before he goes home to tuck Sean into bed. If we have help from family, sometimes we are lucky to both stay with Natalie for the night or go home to rest together. On the weekends, we chase Sean up and down the hospital hallways trying to burn energy off him.
We were told that if Natalie recovers faster, we could have more time at home. This may not be the case. Natalie is doing so amazingly well with her second round of chemo and today her ANC is 700. Her platelets are at 800,000. The doctors are so pleased and so are we. The only thing is that because she is doing so well, they think she could hit 1,000 Wed or Thursday and are thinking of having her start round 3 of chemo this Thursday. To start chemo, her ANC has to be 1,000 and platelets have to be 150,000. We are hoping that they will give us the gift of time as a family and wait until next Tuesday as was planned. We will know the definite answer tomorrow.
Of course, we want her counts to continue going up incredibly as they have been doing. Please don't stop praying for that.
We are enjoying our time home as a family. It is truly bliss.