The good news first- Natalie's WBC jumped up again. They are at .7 today. We wanted them to be at .6, so we are happy it's higher. Still waiting to see what her ANCs are today.
The not so good news is that Natalie still needs to get a biopsy done today at 4:30 pm. They just want to see what is going on in her marrow. Natalie is not looking forward to that procedure. Please pray for us that it goes as well as last time. That one was great because Natalie felt no pain from the injection site and she was sewing and talking/laughing right after that. Also, please pray that the results are great too- no leukemia in her marrow.
Thursday, June 17, 2010
Wednesday, June 16, 2010
Sean's note
Sean just wrote a note for Natalie. He handed it to me to give to her today. It made me cry. Here's what he wrote:
I wish natalie to be beeter. her counts to go up to 500! so i can go to her room.
On the back of the note, he drew a picture. There are words next to the picture that says, "Mr. Cloudy. He fights bad guys with his teeth."
I told him Natalie's ANC count is 160 today. He did his happy dance.
I wish natalie to be beeter. her counts to go up to 500! so i can go to her room.
On the back of the note, he drew a picture. There are words next to the picture that says, "Mr. Cloudy. He fights bad guys with his teeth."
I told him Natalie's ANC count is 160 today. He did his happy dance.
Day 41
Guess what? Natalie's WBC counts went up to .4 AND she finally has some ANCs! Grant texted me at 7 am this morning with the good news. We are so happy!! We are so surprised because we thought for certain there was no chance for her counts to go up at all now this week due to the antibiotics they started on Natalie yesterday. Those normally suppress and slow down her counts. Please continue to pray those counts keep climbing.
Sean's journal helped me last night in my sadness. We decided to read his school journal for his bedtime story last night as a special treat after having a hard day. Sean loves sharing his journal with everybody. He is very proud of it. His entry on May 25 reads, "Im watering my papas patatos. Dont focus on it to much siad papa. He is smart." Sean laughed when we read that together. There is a picture he drew showing himself watering the plants. It made me think of Natalie's counts and how I need to stop focusing on them too much if I want them to grow. I need to just pray for them and let them grow on their own.
Sean's journal helped me last night in my sadness. We decided to read his school journal for his bedtime story last night as a special treat after having a hard day. Sean loves sharing his journal with everybody. He is very proud of it. His entry on May 25 reads, "Im watering my papas patatos. Dont focus on it to much siad papa. He is smart." Sean laughed when we read that together. There is a picture he drew showing himself watering the plants. It made me think of Natalie's counts and how I need to stop focusing on them too much if I want them to grow. I need to just pray for them and let them grow on their own.
Tuesday, June 15, 2010
Days 38, 39 & 40
It's been hard the past couple of days with Natalie. She still is feeling nauseous and her counts are not going up the way the doctors want to see them go up. They went up a little Sunday, but went down again Monday. To make things worse, she spiked a fever at 5 am this morning. They started more antibiotics on her today so I'm losing hope that she will be able to go home this weekend. Yes, some optimistic part of me was really hoping that her counts would soar and we would all be home to celebrate Father's Day together.
They are scheduling another biopsy this Thursday just to check her marrow again. Please pray for the biopsy to go well and for the results to be good. What we want to see is no leukemia and the donor cells grafting in her marrow!
Natalie is happy with her Auntie being here. She said she had a good day today with Natalie until I walked in the door. Natalie was happy and talkative until 5 pm when I showed up. I hope she was being fussy because of the Benedryl, and not me.
Good news for our family is that Sean graduated from Kindergarten on Monday. We are so proud that he finished out the year despite all our fears about him getting sick and passing on the germs to us. Due to his wonderful teacher and the great volunteer parents who sanitized the tables EVERY day for Sean, Sean did not get sick once from being at school. I'm seeing that it does take help from everybody to get our family through this hard time. Sean is very excited about moving on. In his own words, "behold first grade!"
They are scheduling another biopsy this Thursday just to check her marrow again. Please pray for the biopsy to go well and for the results to be good. What we want to see is no leukemia and the donor cells grafting in her marrow!
Natalie is happy with her Auntie being here. She said she had a good day today with Natalie until I walked in the door. Natalie was happy and talkative until 5 pm when I showed up. I hope she was being fussy because of the Benedryl, and not me.
Good news for our family is that Sean graduated from Kindergarten on Monday. We are so proud that he finished out the year despite all our fears about him getting sick and passing on the germs to us. Due to his wonderful teacher and the great volunteer parents who sanitized the tables EVERY day for Sean, Sean did not get sick once from being at school. I'm seeing that it does take help from everybody to get our family through this hard time. Sean is very excited about moving on. In his own words, "behold first grade!"
Saturday, June 12, 2010
Days 36 and 37
Still waiting for those counts to go up. No ANC yet. :-( Natalie has not feeling the greatest the last few days. She has been nauseous. We think it's from eating again after not eating much. We're trying to have her snack throughout the day instead of eating just one big meal.
Please pray that her counts go up to at least .5 and there are some ANC so she does not have to get another biopsy on Thursday.
Please pray that her counts go up to at least .5 and there are some ANC so she does not have to get another biopsy on Thursday.
Thursday, June 10, 2010
Day 35
Natalie's counts are the same as yesterday. She is having a tough day today because of her nausea. She didn't even play Bingo, which really means she is not feeling good. Natalie does not miss Bingo for anything.
We're hoping the nausea is from eating again after not eating much. Also, praying those cells are grafting and growing.
We're hoping the nausea is from eating again after not eating much. Also, praying those cells are grafting and growing.
Wednesday, June 9, 2010
Day 34
I jumped out of my bed when I heard that Natalie's counts moved up a tiny bit today. It's just one point up, but I was so happy to hear that it went up. We'll take it and celebrate. Of course, we need it to go up 500 more than that number. Please keep those prayers going for us with the counts going up. We are hoping that the number will increase greatly tomorrow and keep going up. We really do not want her to have to do another biopsy next Thursday. They will have to do that if her counts are still down.
Natalie is doing well today. She is playing with her iPad right now. She's been eating the a little bit of some turkey pot pie every day. She says it's like eating biscuits with gravy. She is also interested in drinking liquids again.
Natalie is doing well today. She is playing with her iPad right now. She's been eating the a little bit of some turkey pot pie every day. She says it's like eating biscuits with gravy. She is also interested in drinking liquids again.
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